Living with an ostomy can be a life-changing experience that comes with both challenges and rewards. While many people may focus on the difficulties that come with ostomy surgery, there are also many unexpected benefits that can come with this medical procedure.
In this article, we will explore the various advantages of living with an ostomy and the positive impact it can have on your life. We will discuss the improved quality of life, enhanced physical activity, better emotional well-being, improved digestive health, greater control over symptoms, improved skin health, greater awareness and advocacy, unique perspective on life, improved relationships, career advantages, and more.
If you or a loved one is living with an ostomy, it’s important to know that unexpected benefits exist. Our goal is to highlight these positives and provide inspiration for those facing the challenges that come with ostomy surgery.
What is an Ostomy?
An ostomy is a surgical procedure that involves creating an opening (stoma) in the abdomen to allow waste to exit the body. There are three types of ostomies:
- Colostomy: The stoma is created from the large intestine or colon.
- Ileostomy: The stoma is created from the small intestine.
- Urostomy: The stoma is created from the urinary system.
A pouch is attached to the stoma to collect waste. The frequency of emptying the pouch depends on the type of ostomy and other individual factors.
A stoma is a piece of intestine that is brought to the surface of the abdomen and stitched in place. It has no nerve endings or muscle, so it is not painful to touch. The stoma is pink or red and moist, similar to the inside of the mouth or nose.
Improved Quality of Life
Having an ostomy may seem daunting at first, but for many people, it leads to a significantly improved quality of life. One of the biggest advantages is the elimination of constant bathroom trips and the freedom and independence it provides. An ostomy can lead to increased confidence and help people feel more comfortable in their bodies.
It’s important to note that a positive mindset and ongoing support can play a critical role in adjusting to life with an ostomy. Support can come from friends and family, but also from healthcare professionals, support groups, and online communities.
Increased Confidence
For many people with ostomies, the surgery can have a profound effect on their self-esteem. They no longer have to worry about accidents or embarrassing situations due to their previous condition. They can continue with their daily activities without the fear of needing to find a bathroom urgently. Many people who have undergone the surgery report feeling more self-assured and confident as a result.
Greater Independence and Freedom
An ostomy can provide a level of independence and freedom that people may not have experienced for a long time. The person no longer has to plan their day around bathroom trips and can enjoy activities without worrying about setbacks or limitations. It can be liberating to have the ability to go out and be active without having to worry about their old limitations.
This increased independence and freedom can be especially beneficial for those who previously struggled with digestive disorders such as Crohn’s disease or ulcerative colitis. They may have experienced challenges such as diarrhea, cramps, and fatigue, which made it difficult for them to leave their homes without fear of having an accident. Ostomy surgery can provide relief from these symptoms and offer a new lease on life.
Enhanced Physical Activity
Many people with ostomies wonder if they will still be able to maintain an active lifestyle. The answer is yes! While there may be some adjustments and considerations, having an ostomy does not mean you have to give up physical activity. In fact, many ostomates have found that they are able to participate in sports and other activities they enjoyed before their surgery.
Here are some tips for exercising with an ostomy:
- Start slowly and gradually increase intensity.
- Empty your pouch before beginning any physical activity.
- Wear a support belt or wrap to help keep your pouch secure.
- Choose clothing that is comfortable and won’t rub against your stoma.
- If swimming, use a waterproof ostomy pouch and consider wearing a swimsuit with a high waist to cover your pouch.
- Consider using ostomy-specific products such as ostomy belts or wraps designed for physical activity.
There are also many examples of ostomates who have excelled in sports and other physical activities. For example, Laura Zappulla became the first person with an ostomy to complete the Ironman triathlon in 2016. Others have participated in activities such as mountain climbing, running marathons, and playing team sports.
Remember, physical activity is an important part of a healthy lifestyle and having an ostomy should not prevent you from enjoying the activities you love. With the right preparation and equipment, you can continue to be active and stay healthy.
Improved Emotional Well-Being
While having an ostomy can bring about numerous physical benefits, it can also have a significant impact on emotional well-being. Adjusting to life with an ostomy can be challenging, but with the right support and resources, many ostomates report feeling more positive and confident than before.
Coping with an Ostomy
It’s important to acknowledge the emotional toll that having an ostomy can have. It’s common for ostomates to experience anxiety, depression, and other mental health issues. Coping mechanisms such as therapy, support groups, and talking with fellow ostomates can help to alleviate these challenges and provide a sense of community.
It’s essential to remember that everyone copes with their ostomy differently, and it’s okay to take the time to adjust. It’s also important to communicate with loved ones and healthcare providers about any emotional challenges you may be facing.
Emotional Support
Many ostomates find comfort in connecting with others who have undergone similar experiences. There are numerous resources available for emotional support, including online forums and in-person support groups. These resources provide an opportunity to share experiences and offer advice to those who may be struggling.
It’s also important to discuss any emotional challenges with a healthcare professional. They can provide valuable insight and resources for managing mental health while living with an ostomy.
Mental Health Resources
In addition to seeking emotional support, there are numerous mental health resources available for ostomates. Many healthcare providers offer counseling services, and there are also specialized mental health providers who work specifically with individuals living with chronic illnesses.
There are also various online resources available for mental health support. The National Alliance on Mental Illness (NAMI) and Mental Health America are two organizations that offer online support and resources for those living with mental health challenges.
Remember, taking care of your mental health is just as important as taking care of your physical health.
Improved Digestive Health
For individuals with certain digestive conditions, ostomy surgery can provide relief and improved digestive health. Inflammatory bowel disease (IBD), for example, often causes inflammation and damage to the intestinal walls, leading to uncomfortable and debilitating symptoms. In cases where medication and other treatments are not effective, ostomy surgery may be recommended as a solution.
| Benefits of Improved Digestive Health with Ostomy Surgery |
|---|
| Reduced inflammation and irritation in the digestive tract |
| Elimination of painful and uncomfortable symptoms such as chronic diarrhea and abdominal pain |
| Improved absorption of nutrients |
In addition to relief from digestive symptoms, ostomy surgery can also provide greater flexibility with diet and eating habits. Many individuals with IBD must adhere to strict diets in order to manage their symptoms, but with an ostomy they may be able to reintroduce certain foods and enjoy a more varied diet.
It’s important for those with digestive conditions to work closely with their healthcare provider to determine if ostomy surgery is a viable option for them. Proper stoma care, including regular check-ins with a healthcare provider and the use of specialized ostomy products, is also important for maintaining improved digestive health.
Greater Control Over Symptoms
One of the most significant benefits of having an ostomy is greater control over symptoms. Proper stoma care and the use of ostomy products can help manage a variety of symptoms, such as leakage, skin irritation, and odor.
| Tip | Description |
|---|---|
| Stick with a Routine | Creating and following a consistent care routine can help manage symptoms and prevent complications. |
| Use the Right Products | Working with a healthcare provider to find the right ostomy products can significantly reduce symptoms and improve quality of life. Some products to consider include barrier creams, powders, and deodorizers. |
| Plan Ahead | When out in public or traveling, it can be helpful to plan ahead and bring extra supplies to manage symptoms. |
It’s essential to work closely with healthcare providers to find the right products and care routine for each individual. By doing so, ostomates can gain greater control over symptoms and enjoy a better quality of life.
Improved Skin Health
Having an ostomy can sometimes lead to skin-related issues such as irritation, rashes, and infections. However, with proper care and the use of ostomy accessories, these issues can be prevented.
One important aspect of maintaining good skin health with an ostomy is to ensure that the skin around the stoma is clean and dry. This can be achieved through frequent washing with mild soap and water, followed by thorough drying. It is also important to avoid using harsh chemicals or abrasive materials on the skin around the stoma.
In addition to proper cleaning, the use of ostomy accessories such as barrier creams and powders can help prevent skin breakdown and irritation. These products can provide a protective barrier between the skin and the ostomy appliance, reducing the risk of skin damage due to constant moisture and friction.
There are a variety of ostomy accessories available on the market, including adhesive removers, skin barrier wipes, and stoma powder. It is important to work with a healthcare provider to determine which products are best suited for individual needs and preferences.
Overall, while skin-related issues can sometimes be a challenge for those with an ostomy, with proper care and the use of ostomy accessories, improved skin health is possible.
Greater Awareness and Advocacy
Despite the many benefits of ostomy surgery, there is still a significant amount of stigma surrounding ostomies. However, a growing number of individuals and organizations are working to increase awareness and reduce this stigma, promoting education and advocacy for the ostomy community.
Ostomy Awareness
Ostomy awareness, or the effort to educate the general public about ostomies and their impact on the lives of those who have them, is crucial in reducing stigma and increasing understanding. Organizations such as the United Ostomy Associations of America (UOAA) and Crohn’s & Colitis Foundation offer resources and support for ostomates and their families. These organizations also work closely with medical professionals to ensure that accurate and up-to-date information is available to those who need it.
Ostomy Advocacy
Ostomy advocacy involves not only raising awareness about ostomies but also advocating for the rights and well-being of ostomates. Advocacy efforts can include lobbying for better insurance coverage for ostomy supplies, promoting equal employment opportunities for ostomates, and pushing for more comprehensive support and resources for the ostomy community. As the presence and voice of the ostomy community grow, so does its ability to affect change and advocate for its members.
Ostomy Education
Education about ostomies is critical not only for the general public but also for ostomates themselves. Ostomy education can help ostomates understand their condition and how to manage it effectively. This education can include information on proper stoma care, how to prevent and manage skin irritation, and what to expect during and after ostomy surgery. It can also provide valuable resources for coping with the emotional impact of ostomy surgery and connecting with others in the ostomy community.
Overall, greater awareness and advocacy for ostomates and the ostomy community can help to reduce stigma, improve access to resources and support, and increase understanding of the benefits of ostomy surgery.
Unique Perspective on Life
Living with an ostomy can provide individuals with a unique perspective on life and the world around them. Ostomates often develop a deeper appreciation for their health and the everyday activities that may have previously been taken for granted. Furthermore, joining the ostomy community can provide a sense of belonging and support which can be incredibly valuable during the adaptation process.
Connecting with other ostomates who share similar experiences can offer a sense of camaraderie and belonging, which can be especially beneficial for those who may feel isolated or alone. There are many resources available to encourage ostomy community building and foster new friendships, such as support groups or online forums.
Improved Relationships
Having an ostomy can have an impact on relationships, both intimate and platonic. It is not uncommon for ostomates to feel self-conscious or worried about how their ostomy might be perceived by others. However, with open communication and education, relationships can actually be improved.
When it comes to intimate relationships, it is important to have open and honest communication with your partner. Many people with ostomies worry about how their partner will react to their ostomy, but in reality, most people are accepting and supportive. It can be helpful to discuss the ostomy with your partner before becoming intimate, and to explain what it is and why it is necessary. It is also important to remember that there are many ways to be intimate without involving the ostomy, and that there are products available that can help to conceal the ostomy if desired.
In platonic relationships, it can be helpful to educate friends and family about ostomies. This can help to reduce any awkwardness or discomfort and can also lead to a greater level of understanding and support. It is also important to remember that having an ostomy does not define you as a person, and that the people who truly care about you will accept you for who you are.
Many ostomy support groups and online forums exist to provide support and advice for those navigating relationships with an ostomy. These resources can be incredibly helpful for those who feel isolated or unsure of how to approach relationships with an ostomy.
Career Advantages
Having an ostomy does not need to limit your career opportunities. In fact, it can provide unique advantages in the workplace. Many employers are recognizing the value of a diverse workforce and are actively seeking to hire people with disabilities, including ostomates.
Additionally, ostomates are often eligible for job accommodations under the Americans with Disabilities Act (ADA), which can include flexible scheduling, modified workstations, and assistive technology. If you need assistance navigating the process of requesting accommodations, resources are available to help.
| Job Opportunities for Ostomates | Accommodations in the Workplace |
|---|---|
| Despite misconceptions, having an ostomy does not limit your ability to perform most jobs. Many ostomates work in healthcare, education, business, and other industries. | Under the ADA, employers are required to provide reasonable accommodations to employees with disabilities. For ostomates, this may include breaks for stoma care or modified uniforms to accommodate ostomy appliances. |
| Some companies even have initiatives to hire people with disabilities, including ostomates, and may offer additional support and resources. | If you need assistance navigating the process of requesting accommodations or advocating for your rights in the workplace, resources such as the Job Accommodation Network (JAN) are available to help. |
Misconceptions and Stigma
Unfortunately, there is still a lot of stigma and misconceptions surrounding ostomies. Many people are not familiar with ostomies and may have misconceptions about what they are and what they mean for those who have them. This lack of knowledge can lead to ostracism, discrimination, and other difficulties for ostomates.
Myth: Ostomies are only for old people.
While it is true that ostomies are more common in older populations, they can happen to anyone of any age. Ostomies can be the result of a variety of health conditions, including inflammatory bowel disease, cancer, and trauma. People of all ages can experience these conditions, and therefore may require an ostomy.
Myth: People with ostomies can’t have normal romantic relationships.
This is entirely false. People with ostomies can and do have fulfilling romantic relationships. It may take some time and open communication to discuss the ostomy with a partner, but this is true for any aspect of a relationship. Ostomates can still engage in sexual activity and intimacy like anyone else.
Myth: Ostomies are embarrassing and something to be ashamed of.
This is a harmful misconception that can lead to unnecessary shame and guilt for ostomates. An ostomy is a medical device that helps people manage their health conditions – it is nothing to be ashamed of. While it may take some time to adjust to, an ostomy is just a part of life for many people.
Myth: Ostomates can’t be as active as other people.
This is also false. With proper stoma care and the right products, ostomates can engage in physical activity just like anyone else. There are even professional athletes who have ostomies and continue to compete at high levels. It is important for ostomates to consult with healthcare providers and find the right products and care routine for their needs.
Myth: Ostomies are a sign of weakness.
This is a harmful and baseless myth. Ostomies are a medical necessity for many people and require strength and resilience to manage. Ostomates must consistently take care of their stoma and be prepared for unexpected emergencies. This takes strength and determination.
- Resources: If you or someone you know is struggling with the stigma surrounding ostomies, there are resources available to help. The United Ostomy Associations of America and the Crohn’s and Colitis Foundation both provide support and education for ostomates.
- Education: Education is key to reducing stigma surrounding ostomies. By learning about ostomies and spreading awareness, we can help eliminate harmful myths and misconceptions.
Frequently Asked Questions
Here are some commonly asked questions about ostomies:
What is the process of getting an ostomy?
The process of getting an ostomy involves surgery to create a stoma, or opening, in the abdominal wall. Depending on the type of ostomy, either the colon, the intestine, or the bladder will be connected to the stoma. An ostomy bag is then attached to the stoma to collect waste. Your healthcare provider will provide detailed information on the procedure, recovery process, and stoma care.
What type of activities can I participate in with an ostomy?
Most physical activities can be safely done with an ostomy. Swimming, hiking, yoga, and cycling are just a few examples. Always consult with your healthcare provider before starting a new activity and make sure to take any necessary precautions such as wearing a supportive ostomy belt or using a waterproof ostomy bag.
Can I still have sex with an ostomy?
Yes, having an ostomy should not prevent you from having a fulfilling sex life. Some people may experience temporary discomfort during sexual activity after surgery, but this usually subsides over time. There are also a variety of ostomy accessories that can help with sexual activity, such as ostomy belts and special underwear designed for people with ostomies. It is important to communicate with your partner and be honest about your needs and concerns.
Where can I find support for living with an ostomy?
There are numerous resources available for those living with an ostomy. Many hospitals have dedicated ostomy nurses who can provide valuable information and support. Ostomy support groups and online communities are also available and can be a great source of support and information. Some examples include the United Ostomy Associations of America and the Crohn’s and Colitis Foundation.
What types of supplies will I need with an ostomy?
Depending on the type of ostomy, you may need ostomy bags, adhesive products, and skin care items such as barrier creams and powders. Your healthcare provider can provide specific recommendations based on your individual needs. It is important to have a consistent routine for stoma care and to always have extra supplies on hand in case of emergencies.
